An aspect of living well with a life-limiting illness is being able to discuss and plan future care. This allows you to think about what most matters to you, so those that care for you know and can work with you to do what’s possible.
Advance care planning is a discussion and regular review to help you consider, discuss and decide about what matters to you so that care and treatment in the future is personalised. Your Clinical Nurse Specialist can help you with this, so please talk to them about any queries you have.
How can I plan my care?
You can write down and record your choices through an Advance Care Plan. Writing down what matters to you can be daunting. However, if no one else knows what is important to you, your preferences and choices may not be considered. Writing down your preferences will ensure that anyone who provides care for you can tailor it to your wishes and your Isabel Nurse Specialist can provide you with the paperwork.
Advance care planning creates an ‘advance statement'. Therefore you should review it regularly with your family or health care team and you can change your mind at any time.
Share your advance care planning documentation and use it as a way to discuss your thoughts and feelings with your family, friends and health and social care team. Don’t be afraid to ask your doctor, nurse or carer for advice.
Things you may want to think about
There are a number of practical steps you can take to get your affairs in order. These may include making a will, arranging for someone else to manage your affairs and cornea and tissue donation.
The following websites can provide you with information to help in these matters.
You can access further information from the following websites
Advance decisions and advance statements - Alzheimer's Society