Uniting Voices to Support the Lived Experience in Neurological Conditions

A unique study day exploring neurological care from diagnosis to end of life, combining lived experience, multidisciplinary expertise, and real‑world ethical challenges.  This fully funded, one‑day programme brings together lived experience, multidisciplinary expertise, and practical clinical challenges across the neurological pathway — from first symptoms to end‑of‑life care.

Participants will gain a holistic, human‑centred understanding of what people with neurological conditions truly need, and how collaborative working can transform the quality of care.

WHAT THIS STUDY DAY COVERS

• A neurological patient’s journey under collaborative, whole‑system care
• Huntington’s Disease: a complex case study exploring progression & management
• Ethical challenges: starting, maintaining & withdrawing treatments at end of life
• Community in Action – the role of community and charity in supporting people living with MND
• Lived experience: a carer’s perspective of supporting a partner with MND
• “I Still Have a Voice” – communication aids & Augmentative and Alternative Communication approaches
• Swallowing & dysphagia at end of life

WHY ATTEND?

This programme offers:

• A uniquely integrated view of the neurological journey
• Real stories, real cases, real clinical dilemmas
• Skills to support ethical decision‑making and compassionate communication
• Guidance grounded in current practice and lived experience
• Opportunities to learn from a multidisciplinary team approach
• Content that is both practical and emotionally insightful

WHO SHOULD ATTEND?

This study day is ideal for:

• Nurses
• Allied Health Professionals
• Clinicians & GPs
• Carers & family supporters
• Anyone with an interest in neurological conditions